Useful Links

In 2019 I published an article in the Journal of Clinical Sleep Medicine entitled The Treatment of Narcolepsy with Amphetamine-Based Stimulant Medications: A Call for Better Understanding. 

The article's intended purpose was to highlight how PWN react differently to amphetamines and are resistant to addiction, encouraging clinicians not to hold back from prescribing appropriate dosages to their narcoleptic patients.

In the event your are getting some pushback from your treating clinician regarding increasing your meds, this article is good to print out and bring with you when you go to see them.

Here is the link: https://jcsm.aasm.org/doi/10.5664/jcsm.7788

In 2024 I published another article, this time in the London Journal of Medical and Health Research, entitled Narcolepsy: The Tip of an Iceberg of Neurological Dysfunction.  Here, the article's intended purpose was to demonstrate the many possible ways the dysregulated orexinergic signaling of narcolepsy can present as physical illness, and to encourage clinicians to understand them in context.

It is another useful tool you can show your primary care clinician, who may be confused by your particular collection of symptoms.

Here is the link: https://journalspress.com/LJMHR_Volume23/Narcolepsy-The-Tip-of-an-Iceberg-of-Neurological-Dysfunction.pdf

If you are interested in learning more about the science of narcolepsy, I maintain a collection of journal articles that I have found helpful for that purpose. I don't maintain it as well as I should, but I do add to it from time to time.  If you would like to read those but have no experience with journal articles, fear not - I have written a small article that explains how a non-scientist can read those and actually get something out of them (other than frustrated or sleepy!). You should probably read that first, so here  is the link: https://drive.google.com/file/d/1_NU3_Zk8EdQ97EfIpIeAbzrOdA_yeYa6/view?usp=drive_link

Here is a link to the entire library: https://drive.google.com/drive/folders/0Bw9j76s9u3FQenFSQnFMWl8wN00?resourcekey=0-iC7CWf9RBhc-WEIn3u-CGg&usp=drive_link